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John is an adorable 1-month-old infant from Haiti who needs $897 to fund hydrocephalus treatment so he can grow in good health.

John
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  • $389 raised, $508 to go
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August 10, 2022

John is an adorable 1-month-old infant from Haiti. He lives with his parents and older sister

John has been diagnosed with hydrocephalus, a condition in which excess cerebrospinal fluid accumulates in the brain and increases intracranial pressure. As a result of his condition, John has been experiencing an increasing head circumference. Without treatment, John will experience severe physical and developmental delays.

Our medical partner, Project Medishare, is requesting $897 to cover the cost of John’s surgery at Hospital Bernard Mevs, which will treat his hydrocephalus. This is the only site in the country where this care is currently available. The procedure is scheduled to take place on August 11th. This critical treatment will drain the excess fluid from John’s brain to reduce intracranial pressure and greatly improve his quality of life. With proper treatment, John will hopefully develop into a strong, healthy young boy.

His family share that they are happy to have this early intervention to prevent brain damage from the hydrocephalus.

John is an adorable 1-month-old infant from Haiti. He lives with his parents and older sister John has been diagnosed with hydrocephalus...

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John's Timeline

  • August 10, 2022
    PROFILE SUBMITTED

    John was submitted by Jennifer Rogers, Chief Nursing Officer at Project Medishare.

  • August 11, 2022
    PROFILE PUBLISHED

    John's profile was published to start raising funds.

  • August 16, 2022
    TREATMENT SCHEDULED

    John was scheduled to receive treatment at Hospital Bernard Mevs in Haiti. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • TODAY
    AWAITING FUNDING

    John is currently raising funds for his treatment.

  • TBD
    AWAITING UPDATE

    Awaiting John's treatment update from Project Medishare.

Funded by 17 donors

Funded by 17 donors

Treatment
Hydrocephalus ETV
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $897 for John's treatment
Hospital Fees
$357
Medical Staff
$100
Medication
$80
Supplies
$0
Labs
$10
Radiology
$350
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

Families usually notice this condition with their child as their head grows large. These children do not reach normal developmental milestones and become unable to hold their head up, sit on their own, or talk. Some children become very irritable and become unable to suck and swallow so getting enough nutrition becomes difficult.

​What is the impact on patients’ lives of living with these conditions?

Children living with hydrocephaly are living with some form of brain damage that progresses as they get older. This damage will prevent them from developing on a normal trajectory. They have trouble eating, being able to sit, stand and communicate. Often they develop seizures and often experience pain and irritability. If it remains untreated, this condition will lead to death.

What cultural or regional factors affect the treatment of these conditions?

There is a lot of fear and stigma toward these patients as their heads grow large. Families with children who have hydrocephalus have trouble finding caregivers and support because of this fear. Also it is a financial burden to care for these children because of medication for seizures and the extra care they require as they grow older.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The treatment process involves a surgery to stop the extra fluid in the brain from accumulating and putting pressure on the brain. This is done by making a hole in part of the brain to drain the liquid (ETV). The patient usually spends one or two nights in the hospital and then goes home with a tiny incision in their head and abdomen.

What is the impact of this treatment on the patient’s life?

This treatment is the only thing that will save the patient’s life. This treatment will prevent further brain damage. If it is caught early it allows the child to grow and develop fully. If it is caught late, the patient can receive therapy to assist them to overcome the developmental difficulties caused by the damage already done to their brain.

What potential side effects or risks come with this treatment?

The main complication caused by this surgery is simply that is does not work. In this case the child is given another surgery and a shunt is placed.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There is only one hospital in the country that performs surgeries for children with hydrocephaly. This hospital is in Port au Prince, Haiti. Children that live in the North or South of the country have to travel very far for clinic visits and surgery. This requires spending all day or several days on public transport to reach the hospital.

What are the alternatives to this treatment?

There are no current alternatives this treatment. If the brain damage is too far advanced then palliative care to treat the child’s pain and support the family is the only other option.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.