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Abel is an 11-month-old baby boy from Bolivia who needs $1,500 to fund heart surgery.

Abel
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  • $897 raised, $603 to go
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December 31, 2022

Abel, who is 11 months old, lives with his parents in La Paz. He is his parents’ first child.

Abel was born with a cardiac condition called ventricular septal defect. Because of this, a hole exists between the two lower chambers of his heart. Blood leaks through this hole without passing through Abel’s lungs to obtain oxygen, leaving him weak and short of breath.

Abel’s parents sought the help of our medical partner, Haiti Cardiac Alliance, and now Abel is scheduled for surgery on January 16th, at Hospital del Niño Dr. Ovidio Aliaga Uria. During surgery, doctors will sew the hole shut, so that blood will no longer leak out. This procedure should enable Abel to grow into a healthy young boy.

Abel’s mother said: “Our family is praying that our son will be strong and healthy after this surgery!”

Abel, who is 11 months old, lives with his parents in La Paz. He is his parents' first child. Abel was born with a cardiac condition c...

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Abel's Timeline

  • December 31, 2022
    PROFILE SUBMITTED

    Abel was submitted by Owen Robinson, Executive Director at Haiti Cardiac Alliance.

  • January 16, 2023
    TREATMENT SCHEDULED

    Abel was scheduled to receive treatment at Hospital del Niño Dr. Ovidio Aliaga Uría in Bolivia. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • January 16, 2023
    PROFILE PUBLISHED

    Abel's profile was published to start raising funds.

  • TODAY
    AWAITING FUNDING

    Abel is currently raising funds for his treatment.

  • TBD
    AWAITING UPDATE

    Awaiting Abel's treatment update from Haiti Cardiac Alliance.

Funded by 13 donors

Funded by 13 donors

Treatment
Congenital Cardiac Surgery
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $4,000 for Abel's treatment
Subsidies fund $2,500 and Watsi raises the remaining $1,500
Hospital Fees
$3,000
Medical Staff
$300
Medication
$100
Supplies
$0
Travel
$600
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

When a hole exists in the heart, a physician can hear a buzzing noise, or murmur, in the child's chest as blood passes through the hole at high velocity. Parents might notice that their child cannot keep up with other children in daily activities. In severe cases, the lack of oxygen in the bloodstream can lead to dramatic symptoms, such as blue lips and tongue, clubbed fingers and toes, and heart failure.

​What is the impact on patients’ lives of living with these conditions?

Most congenital cardiac conditions will eventually lead to death without surgery, often within a period of months or years depending on severity. In the meantime, patients experience heart failure as their hearts struggle to compensate for the presence of leaks or other defects. In most conditions, the heart becomes fatigued, limiting the child's ability to be active, go to school, and participate in daily life.

What cultural or regional factors affect the treatment of these conditions?

Pediatric open-heart surgery has only been made available in Bolivia in recent years. Most families are unfamiliar with the concept of open-heart surgery and are at first quite reluctant to allow their child to undergo this care. Indigenous belief systems in Bolivia can at times contribute to a family's reluctance to proceed with surgery, and must be addressed through thoughtful conversation and social accompaniment of each family.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The child's cardiac symptoms are usually first detected by their local pediatrician, who then refers the child to the nearest pediatric cardiologist for exam and diagnosis. Once diagnosed, HCA works with the local cardiologist and the surgical team in La Paz to ensure that the child is enrolled on the waiting list for surgery at the hospital, and works directly with the family to facilitate their transportation to La Paz, often from very long distances, and to support them socially and logistically after arrival. The child then undergoes surgery and recovers for about a week in La Paz before returning home to their community. HCA then coordinates with the child's pediatric cardiologist to ensure high-quality, long-term follow-up care, and provides financial support for medications and doctor visits as needed.

What is the impact of this treatment on the patient’s life?

These treatments are almost always life-saving in nature as the cardiac conditions are not survivable over the long-term without surgery. Within weeks after surgery, the patient should already notice a difference in energy level. Many patients also undergo a growth spurt and/or gain significant weight after a surgery.

What potential side effects or risks come with this treatment?

The risk of death during or shortly after an open-heart surgical procedure is about 3%. Other risks, though rare, include stroke and post-operative infection. In a small percentage of cases, the material used to patch the hole will separate from the edges of the hole, and a follow-up surgery is necessary to re-patch the defect.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

For families without private-sector insurance, the cardiac surgery program in La Paz is the only year-round surgical program in Bolivia capable of treating children who need open-heart surgery. Children come to this program from throughout Bolivia; many families live in extremely remote and mountainous areas that can require several days of overland travel to reach La Paz. For patients who live more than 8-10 hours away by road, HCA arranges for families to come by plane from the nearest commercial airport to their home.

What are the alternatives to this treatment?

In general, patients are treated with medications to prevent heart failure until they are able to obtain their surgeries. Patients may also seek care from traditional healers, who may use liquids and powders derived from local plants and roots.

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100% of your donation funds life-changing surgery.

Dennis

Dennis is the first born in a family of four children. When he finished high school, he was reluctant to join college because of his condition. He currently is not able to work because he gets easily tired and cannot carry heavy loads. He joined college just recently but has been out of school for the past two months. Now that he is at home, he helps his mother who picks tea for a living. He does not have a health insurance coverage and cannot raise the required amount of money to cater for his hospital bill. In 2019 while he was sitting for his national school exams, Dennis experienced sharp pain in his esophagus. He took a glass of water, and the pain went away for a few weeks. The pain used to occur roughly two times in a month and a glass of water would help a lot. Late last year, the pain worsened. He was not in a position to swallow food. He went to a herbalist and was given some medication to use for some time. When the dose was over, the pain was still persistent, and he still could not swallow food normally. He was then referred to Kijabe Hospital by a friend where he was examined and given some medication to use. He didn't feel better and decided to go back to the herbalist for different medication but there was no change. Later he finally returned to Kijabe Hospital and scans and tests revealed that he has Achalasia. He is scheduled for a heller's myotomy which is a curative laparotomy surgery for his condition. Now he needs $1,074 to pay for the surgery. Dennis says, "I feel very sad. If I was healthy, I would be able to work well and be comfortable with myself.”

58% funded

58%funded
$629raised
$445to go

Meet another patient you can support

100% of your donation funds life-changing surgery.