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Juvens from Haiti raised $957 to fund brain surgery.

Juvens
100%
  • $957 raised, $0 to go
$957
raised
$0
to go
Fully funded
Juvens's treatment was fully funded on April 26, 2022.
September 6, 2022

Juvens has not yet undergone surgery.

Our medical partner shared that Juven’s is still preparing for surgery and his doctors feel that his current nutritional status makes the surgery too risky. He’s been admitted to a malnutrition program and will be followed up with in hydrocephaly clinic to support his health. He will be scheduled for surgery when his weight increases and we plan to support his care at that time. Thank you for your understanding and support.

Our medical partner shared that Juven's is still preparing for surgery and his doctors feel that his current nutritional status makes the su...

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April 18, 2022

Juvens is a sweet 2-year-old boy from Haiti. Juvens is his parent’s first child. His parents have been happy to see Juvens starting to play, but his condition makes it difficult for him to control his head and his body. Juvens has been diagnosed with hydrocephalus, a condition in which cerebrospinal fluid accumulates in the brain increasing intracranial pressure. Without treatment, Juvens will experience severe physical and developmental delays.

Our medical partner, Project Medishare, is requesting $957 to cover the cost of surgery for Juvens at Hospital Bernard Mevs that will treat his hydrocephalus. This is the only site in the country where this care is currently available and the procedure is scheduled to take place on April 19th. This critical treatment will place a shunt to drain the excess fluid from Juvens’s brain to reduce intracranial pressure and greatly improve his quality of life. With proper treatment, Juvens will hopefully develop into a strong, healthy young boy.

Juvens’s family is hopeful that the surgery will allow him to be able to walk and talk and be able to play as he grows.

Juvens is a sweet 2-year-old boy from Haiti. Juvens is his parent's first child. His parents have been happy to see Juvens starting to play,...

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Juvens's Timeline

  • April 18, 2022
    PROFILE SUBMITTED

    Juvens was submitted by Jennifer Rogers, Chief Nursing Officer at Project Medishare.

  • April 19, 2022
    TREATMENT SCHEDULED

    Juvens was scheduled to receive treatment at Hospital Bernard Mevs in Haiti. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • April 21, 2022
    PROFILE PUBLISHED

    Juvens's profile was published to start raising funds.

  • April 26, 2022
    FULLY FUNDED

    Juvens's treatment was fully funded.

  • September 6, 2022
    TREATMENT UPDATE

    Juvens's treatment was started but not completed. Read the update.

Funded by 9 donors

Funded by 9 donors

Treatment
Hydrocephalus VPS
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $957 for Juvens's treatment
Hospital Fees
$357
Medical Staff
$100
Medication
$80
Supplies
$60
Labs
$10
Radiology
$350
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

Families usually notice this condition with their child as their head grows large. These children do not reach normal developmental milestones and become unable to hold their head up, sit on their own, or talk. Some children become very irritable and become unable to suck and swallow so getting enough nutrition becomes difficult.

​What is the impact on patients’ lives of living with these conditions?

Children living with hydrocephaly are living with some form of brain damage that progresses as they get older. This damage will prevent them from developing on a normal trajectory. They have trouble eating, being able to sit, stand and communicate. Often they develop seizures and often experience pain and irritability. If it remains untreated, this condition will lead to death.

What cultural or regional factors affect the treatment of these conditions?

There is a lot of fear and stigma toward these patients as their heads grow large. Families with children who have hydrocephalus have trouble finding caregivers and support because of this fear. Also it is a financial burden to care for these children because of medication for seizures and the extra care they require as they grow older.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The treatment process involves a surgery to stop the extra fluid in the brain from accumulating and putting pressure on the brain. This is done by putting a small tube in the brain that drains the fluid into the abdomen (VP shunt). The patient usually spends one or two nights in the hospital and then goes home with a tiny incision in their head and abdomen.

What is the impact of this treatment on the patient’s life?

This treatment is the only thing that will save the patient’s life. This treatment will prevent further brain damage. If it is caught early it allows the child to grow and develop fully. If it is caught late, the patient can receive therapy to assist them to overcome the developmental difficulties caused by the damage already done to their brain.

What potential side effects or risks come with this treatment?

In some children the shunt that drains the fluid into the abdomen can become blocked or infected. In these cases the shunt is removed, the infection is treated, and the shunt is replaced.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There is only one hospital in the country that performs surgeries for children with hydrocephaly. This hospital is in Port au Prince, Haiti. Children that live in the North or South of the country have to travel very far for clinic visits and surgery. This requires spending all day or several days on public transport to reach the hospital.

What are the alternatives to this treatment?

There are no current alternatives this treatment. If the brain damage is too far advanced then palliative care to treat the child’s pain and support the family is the only other option.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Dennis

Dennis is the first born in a family of four children. When he finished high school, he was reluctant to join college because of his condition. He currently is not able to work because he gets easily tired and cannot carry heavy loads. He joined college just recently but has been out of school for the past two months. Now that he is at home, he helps his mother who picks tea for a living. He does not have a health insurance coverage and cannot raise the required amount of money to cater for his hospital bill. In 2019 while he was sitting for his national school exams, Dennis experienced sharp pain in his esophagus. He took a glass of water, and the pain went away for a few weeks. The pain used to occur roughly two times in a month and a glass of water would help a lot. Late last year, the pain worsened. He was not in a position to swallow food. He went to a herbalist and was given some medication to use for some time. When the dose was over, the pain was still persistent, and he still could not swallow food normally. He was then referred to Kijabe Hospital by a friend where he was examined and given some medication to use. He didn't feel better and decided to go back to the herbalist for different medication but there was no change. Later he finally returned to Kijabe Hospital and scans and tests revealed that he has Achalasia. He is scheduled for a heller's myotomy which is a curative laparotomy surgery for his condition. Now he needs $1,074 to pay for the surgery. Dennis says, "I feel very sad. If I was healthy, I would be able to work well and be comfortable with myself.”

58% funded

58%funded
$629raised
$445to go

Meet another patient you can support

100% of your donation funds life-changing surgery.