Meet another patient

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Success! John from Haiti raised $1,500 to fund travel and care so he can undergo cardiac surgery.

John
100%
  • $1,500 raised, $0 to go
$1,500
raised
$0
to go
Fully funded
John's treatment was fully funded on July 30, 2022.

Photo of John post-operation

August 3, 2022

John underwent life-saving cardiac surgery.

During surgery, doctors detached the misaligned blood vessels from John’s heart and reattached them in their correct locations. Blood will now flow normally through John’s heart, and his medical team shared that he should no longer experience symptoms from this condition or be at risk of future complications.

His mother is very grateful for the support offered to their family and shared: “Our family is all very thankful and relieved that our son is safe now!”

During surgery, doctors detached the misaligned blood vessels from John's heart and reattached them in their correct locations. Blood will n...

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May 20, 2022

John is a young student from Haiti who lives with his mother and two older brothers in a neighborhood of Port-au-Prince. He already loves going to kindergarten and enjoys playing with puzzles. John has a cardiac condition called double outlet right ventricle meaning the major arteries connect to the heart in an abnormal location making it difficult for blood to properly flow through his body.

Unfortunately the treatment John needs to heal is not available anywhere in Haiti. So, John is flying to the Cayman Islands to receive cardiac surgery. On May 25th, surgeons will detach the arteries from John’s heart and reconnect them in their anatomically correct locations.

Have a Heart Cayman is contributing $17,000 to pay for this surgery. Our medical partner, Haiti Cardiac Alliance, needs $1,500 to help John’s family cover labs, medicines, and follow-up appointments. It also supports passport obtainment and the social workers from Haiti Cardiac Alliance who will accompany John’s family overseas.

John’s mother shared, “Our family all looks forward to our son having a more normal life after this surgery!”

John is a young student from Haiti who lives with his mother and two older brothers in a neighborhood of Port-au-Prince. He already loves go...

Read more

John's Timeline

  • May 20, 2022
    PROFILE SUBMITTED

    John was submitted by Owen Robinson, Executive Director at Haiti Cardiac Alliance.

  • May 23, 2022
    PROFILE PUBLISHED

    John's profile was published to start raising funds.

  • May 26, 2022
    TREATMENT OCCURRED

    John received treatment at Health City Cayman Islands in Cayman Islands. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • July 30, 2022
    FULLY FUNDED

    John's treatment was fully funded.

  • August 3, 2022
    TREATMENT UPDATE

    John's treatment was successful. Read the update.

Treatment
Overseas Prep and Transportation
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $1,980 for John's treatment
Subsidies fund $480 and Watsi raises the remaining $1,500
Hospital Fees
$0
Medical Staff
$450
Medication
$360
Supplies
$0
Travel
$900
Labs
$180
Other
$90
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

When a hole exists in the heart, a physician can hear a buzzing noise, or murmur, in the child's chest as blood passes through the hole at high velocity. The child's parents might notice that their son or daughter cannot keep up with other children in daily activities. In severe cases, the lack of oxygen in the bloodstream can lead to dramatic symptoms, such as blue lips and tongue, clubbed fingers and toes, and heart failure. The patients treated by Haiti Cardiac Alliance tend to fall into two categories. They are either born with some type of hole or defect in the heart, or they develop valve disease as a result of an untreated strep throat infection (rheumatic fever). Patients with rheumatic valve disease experience swelling of the abdomen and extremities, as the heart tries to circulate blood through the body despite the valve's dysfunction.

​What is the impact on patients’ lives of living with these conditions?

Virtually all of the conditions treated at Haiti Cardiac Alliance will eventually lead to death without surgery, the majority of them within one to two years. In the meantime, patients experience heart failure as their hearts struggle to compensate for the presence of leaks or other defects. In most conditions, the heart becomes fatigued, limiting the child's ability to be active, go to school, and participate in daily life.

What cultural or regional factors affect the treatment of these conditions?

Families in Haiti often have complex cultural mechanisms for understanding cardiac illnesses and their causes, sometimes involving voudou or other religious belief systems. Nevertheless, the overwhelming majority of Haitian families in our medical partner's program also engage with the medical explanations and treatment of these conditions. Parents are willing and cooperative participants in their child's treatment.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The patient is first referred to our medical partner, Haiti Cardiac Alliance (HCA), by a pediatrician or another medical practitioner who detects symptoms that might be cardiac in nature. HCA staff then perform an echocardiogram to diagnose the cardiac condition. If surgery is required, the child joins a triaged waitlist to be placed for surgery with partner hospitals. It can sometimes take 6-12 months to move through this waitlist. During this period, HCA provides periodic cardiac checkups, changing the patient's triage position as appropriate. The child and his/her guardian then travel to the hospital with an HCA social worker. Typically, the child spends 4-5 days in or near the hospital prior to surgery for testing and examinations. After surgery, he or she spends several more days as an inpatient prior to being discharged. When the child is strong enough to travel, usually after several more weeks, he/she returns home to Haiti. HCA provides regular cardiac checkups for at least five years postoperatively before the final discharge from their program.

What is the impact of this treatment on the patient’s life?

These treatments are almost always life-saving in nature. These cardiac conditions are not survivable over the long-term without surgery. Within weeks after surgery, the patient should notice a difference in energy level. Many patients also undergo a growth spurt and/or gain significant weight after a surgery.

What potential side effects or risks come with this treatment?

The risk of death during or shortly after an open-heart surgical procedure is about 3%. Other risks, though rare, include stroke and post-operative infection. In a small percentage of cases, the material used to patch the hole "blows," and a follow-up surgery is necessary to re-patch the defect.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

Patients come to Haiti Cardiac Alliance (HCA) from the entirety of Haiti. This can involve three days of travel in buses, pickup trucks, or even on horseback. There is no cardiac surgery of any kind available in Haiti outside of the HCA treatment network.

What are the alternatives to this treatment?

In general, patients are treated with medications to prevent heart failure until they are ready to travel. Patients may also seek care from traditional healers, who may use liquids and powders derived from local plants and roots.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Khu

Khu is a two-year-old toddler from Burma who lives with her parents and younger sister. She and her sister are both too young to attend school yet. To support their family, her father is a subsistence farmer, and her mother is a homemaker. They also raise chickens and pigs, and they forage for vegetables in the jungle. Two months ago, Khu's family noticed discharge in her right eye. Her right pupil eventually began to turn white, but she fortunately did not express that she was having trouble seeing. Worried about her, Khu’s father took her to the free clinic near their village. The medic at the clinic suspected that she was suffering from a congenital cataract and told Khu’s father that they could not treat her at their clinic. Instead, they recommended that she go to a hospital for further investigation. Doctors want Khu to undergo an MRI, an imaging procedure that uses magnetic fields and radio waves to produce images of bodily organs. This scan will hopefully help doctors diagnose her condition and formulate an appropriate treatment plan. Our medical partner, Burma Children Medical Fund, is requesting $968 to cover the cost of Khu's MRI and care, which is scheduled to take place on August 4th. Her grandfather shares, “Khu is my beloved granddaughter. When I see her suffering from this condition, I feel very sad. I also worry about her future. I don’t want to see her in this condition. I want her to have good vision and have a beautiful life when she grows up. I want her to get treatment and have her vision restored.”

41% funded

41%funded
$401raised
$567to go
Thu Ya

Thu Ya is a 24-year-old man who moved to Mae Sot in April to live with his older sister and search for better job opportunities. Thu Ya’s sister works in an electronics factory, and his brother-in-law works as an agricultural day labourer. Thu Ya does not have regular work yet, but he is paid per task for completing miscellaneous jobs for the factory where his sister works. Their monthly income is just enough to cover their daily needs and pay for basic health care. Every month they send money to Thu Ya and his sister’s parents, who look after his sister’s daughter. Thu Ya was diagnosed with a heart condition that involves a malformation of the mitral valve, the valve between the left atrium and left ventricle. This valve controls the flow of blood, but certain conditions may cause blood to flow backward or the valve to narrow. Currently, Thu Ya experiences shortness of breath when he walks longer distances or whenever he is active. He often experiences rapid breathing and feels tired. He cannot sleep well at night, and he has heart palpitations. He has a poor appetite, and he has not been able to help his sister much around the house since early September 2022. His sister is very worried about his condition. Our medical partner, Burma Children Medical Fund, is requesting $1,500 to fund a mitral valve replacement for Thu Ya. The treatment is scheduled to take place on November 22nd and, once completed, will hopefully allow him to live more comfortably. His sister said, “I have a few sisters, but Thu Ya is my only brother. When I see him in this condition, I feel sad and worried about him. I hope that he will receive surgery and that he will get better soon."

34% funded

34%funded
$523raised
$977to go

Meet another patient you can support

100% of your donation funds life-changing surgery.

Khu

Khu is a two-year-old toddler from Burma who lives with her parents and younger sister. She and her sister are both too young to attend school yet. To support their family, her father is a subsistence farmer, and her mother is a homemaker. They also raise chickens and pigs, and they forage for vegetables in the jungle. Two months ago, Khu's family noticed discharge in her right eye. Her right pupil eventually began to turn white, but she fortunately did not express that she was having trouble seeing. Worried about her, Khu’s father took her to the free clinic near their village. The medic at the clinic suspected that she was suffering from a congenital cataract and told Khu’s father that they could not treat her at their clinic. Instead, they recommended that she go to a hospital for further investigation. Doctors want Khu to undergo an MRI, an imaging procedure that uses magnetic fields and radio waves to produce images of bodily organs. This scan will hopefully help doctors diagnose her condition and formulate an appropriate treatment plan. Our medical partner, Burma Children Medical Fund, is requesting $968 to cover the cost of Khu's MRI and care, which is scheduled to take place on August 4th. Her grandfather shares, “Khu is my beloved granddaughter. When I see her suffering from this condition, I feel very sad. I also worry about her future. I don’t want to see her in this condition. I want her to have good vision and have a beautiful life when she grows up. I want her to get treatment and have her vision restored.”

41% funded

41%funded
$401raised
$567to go