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Success! Abigaelle from Haiti raised $957 to fund hydrocephalus treatment so she can grow to be a strong, healthy young girl.

Abigaelle
100%
  • $957 raised, $0 to go
$957
raised
$0
to go
Fully funded
Abigaelle's treatment was fully funded on December 19, 2022.

Photo of Abigaelle post-operation

December 27, 2022

Abigaelle underwent hydrocephalus treatment so she can grow to be a strong, healthy young girl.

Beautiful Abigaelle underwent surgery and now will be able to grow up and develop without continued problems from hydrocephalus. This treatment was absolutely life-changing for her and her family.

Her family shared that they are excited to be able to enjoy life with their daughter at home after her surgery.

Beautiful Abigaelle underwent surgery and now will be able to grow up and develop without continued problems from hydrocephalus. This treatm...

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July 12, 2022

Abigaelle is an 18-month-old infant from Haiti. She has two siblings: one brother and one sister. She is a happy and cheerful baby who loves to smile and play!

Abigaelle has been diagnosed with hydrocephalus, a condition in which excess cerebrospinal fluid accumulates in the brain and increases intracranial pressure. As a result of her condition, Abigaelle has been experiencing an increase in head circumference. Without treatment, Abigaelle will experience severe physical and developmental delays.

Our medical partner, Project Medishare, is requesting $957 to cover the cost of surgery for Abigaelle at Hospital Bernard Mevs to treat her hydrocephalus. This is the only site in the country where this care is currently available. The procedure is scheduled to take place on July 13th. This critical treatment will place a shunt to drain the excess fluid from Abigaelle’s brain to reduce intracranial pressure and greatly improve her quality of life. With proper treatment, she will hopefully develop into a strong, healthy young girl.

Abigaelle’s family shares that they are looking forward to their child being healthy.

Abigaelle is an 18-month-old infant from Haiti. She has two siblings: one brother and one sister. She is a happy and cheerful baby who loves...

Read more

Abigaelle's Timeline

  • July 12, 2022
    PROFILE SUBMITTED

    Abigaelle was submitted by Jennifer Rogers, Chief Nursing Officer at Project Medishare.

  • July 13, 2022
    PROFILE PUBLISHED

    Abigaelle's profile was published to start raising funds.

  • July 14, 2022
    TREATMENT OCCURRED

    Abigaelle received treatment at Hospital Bernard Mevs in Haiti. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • December 19, 2022
    FULLY FUNDED

    Abigaelle's treatment was fully funded.

  • December 27, 2022
    TREATMENT UPDATE

    Abigaelle's treatment was successful. Read the update.

Funded by 22 donors

Funded by 22 donors

Treatment
Hydrocephalus VPS
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $957 for Abigaelle's treatment
Hospital Fees
$357
Medical Staff
$100
Medication
$80
Supplies
$60
Labs
$10
Radiology
$350
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

Families usually notice this condition with their child as their head grows large. These children do not reach normal developmental milestones and become unable to hold their head up, sit on their own, or talk. Some children become very irritable and become unable to suck and swallow so getting enough nutrition becomes difficult.

​What is the impact on patients’ lives of living with these conditions?

Children living with hydrocephaly are living with some form of brain damage that progresses as they get older. This damage will prevent them from developing on a normal trajectory. They have trouble eating, being able to sit, stand and communicate. Often they develop seizures and often experience pain and irritability. If it remains untreated, this condition will lead to death.

What cultural or regional factors affect the treatment of these conditions?

There is a lot of fear and stigma toward these patients as their heads grow large. Families with children who have hydrocephalus have trouble finding caregivers and support because of this fear. Also it is a financial burden to care for these children because of medication for seizures and the extra care they require as they grow older.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The treatment process involves a surgery to stop the extra fluid in the brain from accumulating and putting pressure on the brain. This is done by putting a small tube in the brain that drains the fluid into the abdomen (VP shunt). The patient usually spends one or two nights in the hospital and then goes home with a tiny incision in their head and abdomen.

What is the impact of this treatment on the patient’s life?

This treatment is the only thing that will save the patient’s life. This treatment will prevent further brain damage. If it is caught early it allows the child to grow and develop fully. If it is caught late, the patient can receive therapy to assist them to overcome the developmental difficulties caused by the damage already done to their brain.

What potential side effects or risks come with this treatment?

In some children the shunt that drains the fluid into the abdomen can become blocked or infected. In these cases the shunt is removed, the infection is treated, and the shunt is replaced.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There is only one hospital in the country that performs surgeries for children with hydrocephaly. This hospital is in Port au Prince, Haiti. Children that live in the North or South of the country have to travel very far for clinic visits and surgery. This requires spending all day or several days on public transport to reach the hospital.

What are the alternatives to this treatment?

There are no current alternatives this treatment. If the brain damage is too far advanced then palliative care to treat the child’s pain and support the family is the only other option.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Chit Htun

Chit Htun is a 21-year-old man from Burma. He lives with his mother and two younger sisters and a younger brother. His father is deceased and his mother is a homemaker. She takes care of the household and her children. All of his younger siblings are students, while Chit Htun and his eldest sister are doing an online general education diploma. Chit Htun has two aunts who help the family financially as they can. He also has a former teacher who is able to contribute some money consistently to the family. This normally has been enough to cover the family’s basic necessities but since the February 2021 coup, prices have increased significantly and there is not always enough money to pay for food. Sometimes the family has free meals at the local monastery. Chit Htun was born with spina bifida as well as hydrocephalus at the Maternal and Child Hospital in Myawaddy in Burma and when he was just over a month old, he had a stent inserted in his brain to control hydrocephalus. He has multiple conditions arising from the spina bifida, including bilateral atrophy to his lower legs with club feet, a neurogenic bladder requiring a suprapubic catheter, a neurogenic bowel requiring a colostomy, along with scoliosis. Despite the number of surgeries he has undergone, and the pain he endures, he is a pleasant and engaging young man, thoughtful and independent. In Oct 2021, Chit Htun fell down from some stairs at his home. Though there was no loss of consciousness at the time, he hit his head with the fall. Since that time, he has been experiencing headaches and dizziness with occasional loss of consciousness. His mother brought him to the hospital in Yangon and a scan showed that the original shunt was in place. A second shunt was inserted, and it appeared to help with the loss of consciousness, but headaches and dizziness continued to be a problem. After the second shunt was cleared of partial blockage, Chit Htun still continued to have headaches and dizziness and then in October, he had a seizure, accompanied by nausea and vomiting. His family cannot afford to go for further investigation and treatment so that they came to Mae Tao Clinic across the border in Mae Sot, Thailand. Doctors want Chit Htun to undergo a CT scan, a procedure in which x-ray images taken from several angles are combined to produce cross-sectional images of the body. This scan will hopefully help doctors diagnose his condition and formulate an appropriate treatment plan. Our medical partner, Burma Children Medical Fund, is requesting $414 to cover the cost of Chit Htun's CT scan and care, scheduled for November 28th. Chit Htun said, “My condition is interrupting my education and my future. When I always have to stop my studies for treatment, it makes it difficult to continue.”

10% funded

10%funded
$45raised
$369to go

Meet another patient you can support

100% of your donation funds life-changing surgery.