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Success! Nedjee from Haiti raised $1,500 to fund surgery prep and travel for a life-saving cardiac procedure.

Nedjee
100%
  • $1,500 raised, $0 to go
$1,500
raised
$0
to go
Fully funded
Nedjee's treatment was fully funded on November 29, 2022.

Photo of Nedjee post-operation

December 20, 2022

Nedjee underwent a life-saving cardiac procedure.

Nedjee is doing so well after her surgery! Her family had to change their travel plans as it was challenging to get the visas required, but she was able to finally go for heart surgery and all went smoothly. During surgery, doctors sewed a patch over the hole in Nedjee’s heart so that blood can no longer leak through it. The medical team noted that she should be able to live a normal life with no further risk from this condition.

Her father told us: “Our entire family is very happy and relieved to know that Nedjee’s heart is normal now!”

Nedjee is doing so well after her surgery! Her family had to change their travel plans as it was challenging to get the visas required, but ...

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June 30, 2022

Nedjee is a 17-month-old baby girl from Haiti. She lives with her parents, grandparents, and three siblings in a neighborhood outside of the capital city, Port-au-Prince. Nedjee has a cardiac condition called ventricular septal defect, which means a hole exists between the two lower chambers of her heart. As a result, blood leaks through this hole without passing through her lungs to obtain oxygen, leaving her weak and short of breath.

The surgery that Nedjee needs for her birth condition is not available within her country. Fortunately, Nedjee will be able to fly to the Dominican Republic to receive treatment. On July 25th, she will undergo cardiac surgery, during which surgeons will sew a patch over the hole so that blood can no longer leak through it. Nedjee’s family is requesting assistance to cover the costs of Nedjee’s surgery prep, as our medical partner, Haiti Cardiac Alliance (HCA), is contributing the funds needed to cover the cost of surgery. HCA is requesting $1,500 to cover the surgery prep, which includes all labs, medication, check-up and follow-up appointments, and the passports needed for HCA’s social workers to accompany Nedjee and her family overseas.

Nedjee’s mother shared, “Our family is all praying that this surgery will go well and that our daughter’s heart will be stronger afterward.”

Nedjee is a 17-month-old baby girl from Haiti. She lives with her parents, grandparents, and three siblings in a neighborhood outside of the...

Read more

Nedjee's Timeline

  • June 30, 2022
    PROFILE SUBMITTED

    Nedjee was submitted by Owen Robinson, Executive Director at Haiti Cardiac Alliance.

  • June 30, 2022
    PROFILE PUBLISHED

    Nedjee's profile was published to start raising funds.

  • November 18, 2022
    TREATMENT OCCURRED

    Nedjee received treatment at Health City Cayman Islands in Cayman Islands. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • November 29, 2022
    FULLY FUNDED

    Nedjee's treatment was fully funded.

  • December 20, 2022
    TREATMENT UPDATE

    Nedjee's treatment was successful. Read the update.

Treatment
Overseas Prep and Transportation
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $1,980 for Nedjee's treatment
Subsidies fund $480 and Watsi raises the remaining $1,500
Hospital Fees
$0
Medical Staff
$450
Medication
$360
Supplies
$0
Travel
$900
Labs
$180
Other
$90
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

When a hole exists in the heart, a physician can hear a buzzing noise, or murmur, in the child's chest as blood passes through the hole at high velocity. The child's parents might notice that their son or daughter cannot keep up with other children in daily activities. In severe cases, the lack of oxygen in the bloodstream can lead to dramatic symptoms, such as blue lips and tongue, clubbed fingers and toes, and heart failure. The patients treated by Haiti Cardiac Alliance tend to fall into two categories. They are either born with some type of hole or defect in the heart, or they develop valve disease as a result of an untreated strep throat infection (rheumatic fever). Patients with rheumatic valve disease experience swelling of the abdomen and extremities, as the heart tries to circulate blood through the body despite the valve's dysfunction.

​What is the impact on patients’ lives of living with these conditions?

Virtually all of the conditions treated at Haiti Cardiac Alliance will eventually lead to death without surgery, the majority of them within one to two years. In the meantime, patients experience heart failure as their hearts struggle to compensate for the presence of leaks or other defects. In most conditions, the heart becomes fatigued, limiting the child's ability to be active, go to school, and participate in daily life.

What cultural or regional factors affect the treatment of these conditions?

Families in Haiti often have complex cultural mechanisms for understanding cardiac illnesses and their causes, sometimes involving voudou or other religious belief systems. Nevertheless, the overwhelming majority of Haitian families in our medical partner's program also engage with the medical explanations and treatment of these conditions. Parents are willing and cooperative participants in their child's treatment.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The patient is first referred to our medical partner, Haiti Cardiac Alliance (HCA), by a pediatrician or another medical practitioner who detects symptoms that might be cardiac in nature. HCA staff then perform an echocardiogram to diagnose the cardiac condition. If surgery is required, the child joins a triaged waitlist to be placed for surgery with partner hospitals. It can sometimes take 6-12 months to move through this waitlist. During this period, HCA provides periodic cardiac checkups, changing the patient's triage position as appropriate. The child and his/her guardian then travel to the hospital with an HCA social worker. Typically, the child spends 4-5 days in or near the hospital prior to surgery for testing and examinations. After surgery, he or she spends several more days as an inpatient prior to being discharged. When the child is strong enough to travel, usually after several more weeks, he/she returns home to Haiti. HCA provides regular cardiac checkups for at least five years postoperatively before the final discharge from their program.

What is the impact of this treatment on the patient’s life?

These treatments are almost always life-saving in nature. These cardiac conditions are not survivable over the long-term without surgery. Within weeks after surgery, the patient should notice a difference in energy level. Many patients also undergo a growth spurt and/or gain significant weight after a surgery.

What potential side effects or risks come with this treatment?

The risk of death during or shortly after an open-heart surgical procedure is about 3%. Other risks, though rare, include stroke and post-operative infection. In a small percentage of cases, the material used to patch the hole "blows," and a follow-up surgery is necessary to re-patch the defect.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

Patients come to Haiti Cardiac Alliance (HCA) from the entirety of Haiti. This can involve three days of travel in buses, pickup trucks, or even on horseback. There is no cardiac surgery of any kind available in Haiti outside of the HCA treatment network.

What are the alternatives to this treatment?

In general, patients are treated with medications to prevent heart failure until they are ready to travel. Patients may also seek care from traditional healers, who may use liquids and powders derived from local plants and roots.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.